Lesley Goodburn

Lesley Goodburn has worked inpatient experience and public and patient involvement for the last 10 years after a career in the customer service industry. She now works as Experience of Care Lead for Provider Improvement at NHS England NHS improvement. This involves working with NHS trusts to do organisational development diagnostics for experience of care looking at leadership, culture, and learning. Lesley also leads the Heads of Patient Experience (HoPE) Network.

Lesley has shared her personal story of the death of her husband Seth via a film, a play and educational resources that explores the journey through the 33 short and heart-breaking days where they were both thrust into a world of palliative and end of life care.

Through her personal improvement work, she aims to raise awareness of signs and symptoms of pancreatic cancer, improve psychological support for patients and families given a late terminal diagnosis and improve end of life care.


My Grief Story